Poor Health Sucks
Health is a fragile thing in my world. Not only do I live with disabilities, but I am surrounded by people who live with disabilities and health issues. At the end of April my support worker was diagnosed with cancer and had to have immediate surgery at the start of May. This meant that they were out of action for two months whilst they recovered. My sister’s partner was also diagnosed with cancer around the same time and has since had surgery and is undergoing treatment to combat the spread. My aunt has also had surgery to remove cancer.
Like a locomotive, the months picked up steam
Like a locomotive, the months picked up steam
After a busy start to the year, my plans died down somewhat in March with only one photography adventure, but what an adventure it was.
Summer is a busy time!
January and February are always busy months for work, and this year was no exception. On the 17th of January I was given the honour of shooting the rehearsal images for Ben MacEllen’s new play The Placeholder. Funny, sharp, and deeply human, The Placeholder explores how feminism, friendship, and chosen family collide – and how love is tested when those closest to us change in ways we never expected. I originally met Ben in 2022 through the Midsumma Pathways mentorship for artists with disabilities and we’ve been mates since. Ben is a phenomenal writer and if The Placeholder ever comes to a town near you, please go see it.
All Quiet on the Photography Front
Life has been quiet over the last two months. I cracked a tooth and eventually, due to pain, had to get it removed. Luckily, I was able to crack into my savings to pay for both the endodontist and the extraction.
Busy With a Mixed Bag
September started quietly with flu and a visit from my brother, whom I hadn’t seen for about ten years as he had been living in the UK. I was nervous to have him stay as we had only spoken over zoom as a group with my sister whilst our ma was in hospital dying. The time before that was a few Christmases’ past where he had been drunk and deadnaming me and misgendering me. However, the visit was well received, and we had lots to talk about and share. Having a parent pass sobers you and apparently my brother has been abstemious for some time, so he seems to have matured a lot (he’s seven years younger than me).
Old Habits & an Old Dog
They say start as you intend to go on, and I had every intention of starting this blog post in January on time. Alas, the overwhelm was real with all of the events I’m about to talk about. I found myself sliding into old territory of not getting out of bed/showering/napping even more than usual around the editing of events.
New Year, New Me. Apparently.
Can a person living with multiple disabilities make new year’s resolutions to be a new person? I believe so. There is always an opportunity to do and be better than we previously were, even when our bodies and/or minds limit us in how we go about these changes.
But before I get to January, there’s the full month of December to get through! Whilst on paper there are only three events to cover, there are multiple parts, and we begin with an adventure to Piggoreet with my support worker on the 11th Dec.
A Quiet Month Is A Good Month - Or Is It?
As I said, this was a less busy month than what I have experienced in the past. I’m not mad about it. In fact, it was exactly what was called for in my hectic life. I need to practice slowing down. My daily rests are a great start, but they are the tip of the iceberg of sorting out a comfortable living. I grew up with the “head down, bum up” mentality of the working class British, and as a British, my father taught me not to complain about it. I have been working on this. Whilst I do not complain out loud to others, I certainly have stern words with myself these days and ask myself whether or not working so hard is a value add to my life. I’m trying to practice the art of not giving a fck, but decades of poor life skills have made it a hard lesson to learn. Once again, I leave you with this – be kind to yourself, on both the easy days and the hard days. Take nothing for granted.
A Crisis of Ability
Michael drove us to Canberra for their large family get together (about 30 of us, all immediate family) to celebrate their parents 50th wedding anniversary. Whilst I’ve been married, I consider that an anomaly as I do not believe in marriage. However, to see two people working hard to stay together for so long and genuinely love each other after such a large amount of time does impress me. I realised something a few months ago about my identity
Busy Does Not Make The Body Stronger
At last chat with my GP, we discussed me possibly having Restless Leg Syndrome brought on by the trauma of suddenly losing my ma. However, I am due for another appointment on Monday as something turned up in my bloods. I am hoping this will bring relief to the chronic pain I've been suffering for the past two months.
Despite the trauma and the grief and the pain I have been busy, as is my subconscious want.