A Gala: the Goddess Keeps Me Humble
The Summer months, January in particular, is always a busy time filled with travel to see family (this year we drove to Yass to spend time with my sister and her three children for Christmas), and photography gigs and adventures. (Profile image by Tom Noble)
The Summer months, January in particular, is always a busy time filled with travel to see family (this year we drove to Yass to spend time with my sister and her three children for Christmas), and photography gigs and adventures.
Despite also having a Gala to arrange (more about that in a minute), there was a lot of everything else going on, starting with a trip to Dinner Plain in the High Country of the lands of the Gunaikurnai, Dhudoroa, and Jaitmathang peoples.
As was the case for December, I have put the editing of that trip aside, but do have exclusive images, just for my supporters. They were taken with my phone, so don't show the whole grandeur of the region, but I hope they get you excited enough about Country!
The sunrise shoot at Pioneer Lookout, Omeo was initially a bust because I didn't listen to my instincts and I had placed so much pressure on myself to capture meaningful images of Country as part of my push to save it, that I was a grumpy douche! Fortunately, I got over it in time to take great photos in Omeo.
Whilst away for the seven days, I worked my patootie off on the Gala. Promoting the event, including all my talented performers. I was on the wireless! Joy 94.9 had me on as their first guest of 2024 - so honoured! You can listen to the segment here.
In one day, I had 17 items on my to-do list in my schedule; and I completed them all! Including the audio descriptions for all my artwork.
I've been running ragged, often sick, Midsumma Festival Carnival kicked off on the 21st and as an official event photographer it was a long day.
The Gala on the 25th January was a successful hoot and the amazing Tom Noble (@NobleTomNoble), whom you can hire, has already sent me his first pics - I've included a sample below, more will go up on my website eventually (check my website regularly for the link) and on Instagram (@tlwvision). The stunning portrait of me was also taken by Tom.
I am exhausted, and with no help from the gallery who refused to answer many of my questions then act like I was the inconvenience to the point that I am questioning if they’re just a bunch of allists and ableists, I am so incredibly proud of what I pulled off with the Gala opening and the exhibition itself. It is always stressful sharing a piece of your soul with the world - what if they hate it or at least don't empathise with what you're trying to do?
I am particularly proud of the additional canvas I decided to do at the end of the 17 months after visiting many art galleries with so many textures that I could not touch - I would walk away overstimulated from the effort! So, I decided to create a canvas that people could touch - run their fingers over the textured paint and "Feel Country". Tom has captured that well in his image of Yin Paradies above.
Every single performer was sensational, and the gathered crowd enjoyed it. Bayley Turner spoke beautiful poetry; Dean Arcuri belted out an Abba medley; Wakaya man, Yin Paradies gave a speech that made me so emotional and proud that I am going to put it up on my website; Saskia hula hooped the roof down; and Rosie Roulette sang a pitch-perfect rendition of Kate Miller-Heidke's "Gravity"; and our MC Goddess Naavikaran was witty and performed a beautiful song in her mother-tongue of India. If you weren't there, you missed out!
As I think I mentioned last month, 5% of every sale from The Reclamation of Terra between now and the 5th of Feb will be donated to Environment Victoria, a grassroots community organisation who works tirelessly on a local, state, and Federal level to reverse climate devastation and our current negative impact on the planet.
Before I go for the month, I managed to shoot Jessie's Ngaio's original one human play "Oh Yuck It's Me" on opening night as part of the Midsumma Festival. So very thankful to have been given that opportunity. This is a play that will make you both cry and laugh and move you in all the ways in between. Jessie is a masterful writer and performer. Tix here.
Still so much to do, but that will be in February's post!
I almost forgot the fall and how I see the Goddess as she keeps me grounded, despite my achievements. Two days after the Gala, @littleElfman tested positive for Covid. The gallery subsequently locked me out from attending and speaking about my exhibition, despite me consistently testing negative for Covid and never having Covid - ever.
Whilst angry at my treatment, setbacks like this keep me humble. The Gala has people talking about my intent and my vision for the world - this is the success I was after, but the Goddess sending me these hurdles keeps me from getting an inflated ego and I am thankful to be shown my place in the natural order of life. I am but one link in the cosmic chain of change. To be truly successful, we all must be united and experience equity, including all those nations and individuals suffering from ongoing genocide, oppression, murder, and destructive colonial and capitalist rule.
This blogs question: How do you celebrate your wins, whilst also maintaining humility?
Keep finding your peace and joy within and with others.
Be kind to yourselves, each other, and the planet.
T.Leigh
Happiness Is…
Hello friends, I bring you tidings and good news this blog post, which is a pleasant change from the previous. December can be a mixed bag of emotions if you are part of the rainbow community, with large numbers of us estranged from family (not to mention the violence).
*trigger warning: mention of violence
Hello friends, I bring you tidings and good news this blog post, which is a pleasant change from the previous. December can be a mixed bag of emotions if you are part of the rainbow community, with large numbers of us estranged from family (not to mention the violence).
For me, this December started off with a visit to South Australia/ Kaurna country to visit my ma and aunt and were able to sneak in some time with my cousin and his family and reconnect with them. I am pleased to report that my ma is doing surprisingly well after her fall and month-long stay in hospital from knee-replacement surgery and subsequent complications. This is a huge relief to me. She also surprised me by not referring to my past self in the feminine; listened to me speak about Palestine and the other atrocities happening across the globe and in our own country; and never uttered the phrase “I’m not racist, but…”. I waited for these things to occur and am still pleasantly in shock that she seems to have changed her ways for the better.
Whilst in town, we also made time for friendly catch ups, and I was able to get to the Karrawirra Parri to photograph it for sunset.
You’ll have to excuse the mobile phone picture; I have stopped editing photos to concentrate on my upcoming Gala Exhibition Opening (more on that later).
In fact, my last photography adventure with my support worker was on the 7th of December to Point Leo, lands of the Bunurong people. All the images are on my hard drive, screaming at me to make joyous, however I have no time. Here’s a behind-the-scenes mobile image that I didn’t take with my camera.
On the 9th of December I had the pleasure of photographing the annual Carols by Queerlight celebration by the Melbourne Rainbow Band. As this was for a client, I can show you one of the images I produced of the night.
Mainly what I worked on in December was my Gala and trying to acquire funding through the Australian Cultural Fund project. I have happy to say that with your generous support, I reached just over halfway to my target finances. Whilst this is amazing news, it does mean that I will be spending all my new waterproof camera savings to finance the rest.
Unfortunately, that means no camera upgrade for me until possibly after Midsumma (February). This is a shame, considering I am an official Midsumma photographer and wanted the upgrade to produce better work and do less post-editing to make up for the lack of quality of my current camera.
Therefore, if you know of anyone who loves art and photography, who would like to be a financial benefactor to a queer, neurodivergent, disabled trans man, let them know I am in need. To be completely transparent, here is what I am requiring, with the camera body the most urgent, then the lenses. As I am upgrading from what is called a “crop sensor” to a “full frame” camera, most of the lenses that I have will unfortunately also need to be replaced eventually.
I have also been working on my health – putting back all the naps, listening to my body, and I finally received my nerve root injection at the C4/5 vertebrae (in the top of the neck), and it seems to have actually worked which means the arthritic pain has substantially subsided.
Then I went to Yass/land of the Ngunnawal & Wiradjuri peoples, to visit my sister and her three amazing children. The oldest is 17, the youngest 9, and they are dealing with the fact that their father is an abusive douche. Their father reminds me of my own father and fortunately I was able to let them know that it gets better and that the emotions they are experiencing now, can be healed. I am so immensely proud of them all, especially my sister and despite hearing of the abuses she suffered, which were triggering for me to hear due to my own past, we were able to love each other’s company and I hope she will love herself enough in the future to embrace her own healing. Five days with my family is never enough.
The good news is that my Gala Exhibition Opening is ready to go for the 25th of January at the Victorian Artists Society. Being their first queer, trans solo artist is immensely humbling, so I want this Gala to be sensational – you can help with that by attending and supporting the amazing artists who will be performing on the night. Absolutely free, including drinks and finger food. On my home page you will find links to the event and artworks. I will also be linking venue and event accessibility in the coming days.
My question for you this month: How much do you want this world to change? United we can make a difference.
Be kind to yourselves, each other, and the planet.
T.Leigh.
The Resistance is a Full-Time Job
Even though I am better now at scheduling in naps throughout the week, I am not used to resting, to allowing myself that luxury (even the word “luxury” implies rest is laziness). I am not as patient with myself as I would like, and I compare myself to “successful” disabled people within my immediate (and further afield) circles and ask myself “why aren’t I doing more?” All the while knowing that “success” is a predominantly capitalist construct pertaining to material wealth and not, more importantly, spiritual, and emotional wealth.
Hello my friends,
This month’s post is later than usual as I am still suffering from post viral fatigue syndrome after having a nasty virus for two weeks from the 19th of November. The brain fog and lethargy are real!
I keep forgetting (or fooling myself?), about my disabilities and that I can no longer do all of the things. Yet, I am currently still unable to get through the day without several rest periods, so the work leading up to my gala exhibition opening continues to snowball; photography editing piles up on my SD cards; and the daily detritus of life is building a nest and is looking like it’s going to permanently stick around.
My counsellor suggested that I am mourning my former self. I think there is something in that, even after 10 years. Perhaps I am grieving for the abilities I once had when pushing myself to achieve unhealthy benchmarks of success. Societies narrative is that you must keep working and getting better, so I guess I convince myself that I’m “not that disabled” & slip into ableist oversight.
Even though I am better now at scheduling in naps throughout the week, I am not used to resting, to allowing myself that luxury (even the word “luxury” implies rest is laziness). I am not as patient with myself as I would like, and I compare myself to “successful” disabled people within my immediate (and further afield) circles and ask myself “why aren’t I doing more?” All the while knowing that “success” is a predominantly capitalist construct pertaining to material wealth and not, more importantly, spiritual, and emotional wealth.
Nor are the goals I set for myself healthy, or particularly achievable. This high benchmark is a ghost I set for myself when I was young and doing all the sport, before even, when I was running events, and long before I acquired disabilities. They were unachievable back then; they are a pipedream now and need to be retired for the sake of my health and longevity.
My counsellor suggested that others might look at me in the same way and ask themselves why they aren’t doing more things. This gave me pause. I have been indoctrinated with societies narrative for over 40yrs years. There's still so much to unpack and do-over without the burden of having to “be better, recover from illness/injury/disability, work more”.
So, now I am at a point where I need to intrinsically listen to my body and ignore the piles of stuff building up around me. I have scheduled and rescheduled my schedule multiple times to rest whilst still trying to do the “bare minimum” of work that I have set for myself, but now I must start delegating to the friends I have around me whose “can I help” questions are often brushed aside.
Having said all that, I have been busy! The resistance is a full-time job. The sculptural piece "Tidal", one part of my "The Reclamation of Terra" exhibition was showing at the Counihan Gallery in Merri-bek here in Naarm as part of their annual Summer Show.
More good news in the month of November - I received a small fund of $2,500 through Midsumma's partnership with Treasury Wine Estates. I looked up TWE's environmental impact before accepting this funding, as the wine industry is notoriously nefarious when it comes to its green practices, however, after reading up on TWE's sustainability practices, I liked what I saw. They also have an international LGBTQIA+ group encouraging diversity, as well as a group invested in supporting more women in the industry. So, I am happy to say that Treasury Wine Estates are supporting my gala exhibition opening in January.
For Trans Awareness Week I recorded a little something for Joy 94.9fm.
I attended several films and caught up with so many neglected friends during the Melbourne Queer Film Festival.
My Arts Access Victoria class, Artstop, have been working on a video projection "Prism" for months and it was projected on the walls of a Sydney Rd, Brunswick building all month, although, disappointingly, there were some technical glitches, so the word out on the Bulleke-bek street is they are going to reschedule it early 2024 (on a Tuesday night – watch this space for updates).
Then, on the 16th of November, Michael & I travelled north to the lands of the Ngarrindjeri Nation and the Ladji Ladji peoples of what colonisers call the Murray Mallee Region.
Michael was promoting their new anthology "Everything Under the Moon" (which you must buy for yourself and everyone in your life because it is a spectacularly designed and illustrated hardback with some of the World's best young adult authors within), and I tagged along to take some photos. It’s on backorder with Hares & Hyenas but ask your local book seller if they have it or can order it in for you!
On the 28th of November, Midsumma launched their jam-packed festival program. I watched the live stream at home, and colour me surprised when I saw my listing up on the big screen and the marvellous Midsumma CEO, Karen Bryant, talking about it alongside the remarkable Jessie Ngaio (who’s show I have been booked to photograph – can’t wait)!
With the launch, the embargo was lifted so I could officially talk about my Australian Cultural Fund project and try and appeal to some lovely (wealthy) philanthropists. With blessings to some lovely humans, I have raised $2,310 through the project, which means I am still at least $190 short to pay my stellar artists their minimum salary, but we're almost at 50% of the major target, so I'm really excited and massively thankful.
I know you have all donated significantly to this gala exhibition already - you're amazing and have blessed me so much, however, if you could share the link with your networks, I would be most thankful. The project ends on the 30th of December. The ACF takes no fees, and no matter what I raise, I get to keep the funds for my gala – the gala WILL BE GOING AHEAD. Plus, gifts over $2 are tax deductible! If you have not yet gifted me, please consider a $10 donation.
Despite being largely bed-ridden and having to give up tickets to many events so far this month, December is busy (hmmm, didn’t I just say I was going to listen to my body and rest more…)! Look out for my next blog post around this time next month, which will only be days away from the gala launch!!!
I hope life is being magical to you all and that you live with good mental, physical and spiritual health, whatever that looks and feels like to you.
The question for this blog post: How much wood, would a woodchuck chuck, if a woodchuck could chuck wood? (It’s not nearly an irrelevant question as it would first appear)
T.Leigh.
Love Thy Neighbour (and yourself)
My message to y’all this blog post though is that you must continue to fight for what is right in the world, but occasionally take a break for self-care. You are useless if you collapse. Pace yourself. Monitor yourself for signs of cracks and love yourself. Stop for as long as you need, talk to loved ones, or if they too are frazzled, speak to Lifeline or some other professional service so that you can get back to the long fight for the wellbeing of our communities and planet.
From the very beginning of the month, art was happening. My art class, Artstop, run by Arts Access Victoria for humans with disability, have created a projection "Prism" in conjunction with The Little Projection Company (this is our second project with this company). The video is being projected high on the wall at the art precinct of 260 Sydney Rd, Brunswick (Bulleke-bek) in Naarm from dusk till midnight until the 30th of November. We wanted to continue on from the theme of our group exhibition “Shining A Light Into The Darkness”, by investigating the many colours of identity that make up our group and our communities.
Finally managed to get out on a photography adventure with my support worker. We ventured to the outstanding Tesselaar Flower Farm for their tulip displays and because their season had started early due to the messed up weather, we got free passes to the next show and as a bonus, I found two more free passes on the ground!
My sculpture "Tidal", from my anarchic multimedia series "The Reclamation of Terra", has gotten around, first at Brunswick Uniting Church’s exhibition "Living Colour", and currently it is on display at Merri-bek’s Summer Show at Counihan Gallery in Bulleke-bek. Please vote for my sculpture so I can be awarded the People’s Choice Award of $1,000!
I am one of the subjects of a photo shoot for an upcoming (2024) coffee table book and exhibition about the "older" trans community. I think though at not-quite-50, I’m one of the young’uns (which is great for the ego).
Meanwhile, I decided to create a 12th canvas for my Reclamation series, to represent the Intersex community, which is sometimes seen on the progressive pride flag. Here is a sneak peek at it, although it is not finished yet - I have yet to paint the bigender pride flag river motif.
On the 19th of October I photographed the official Naarm book launch of "Everything Under the Moon", an exquisite anthology of faerie tales told in a queerer light, edited by Michael Earp. It was an amazing turnout of all ages on the beautiful rooftop of the Victorian Pride Centre whilst the sun set.
Then I participated in an induction training video for Midsumma as part of their accessibility training. It was a lot of fun, but you'll have to wait to see the video (if I can get my hands on it), as I did not take any behind-the-scenes.
Whilst doing all of this I was also hustling to try and obtain more funding for the gala exhibition launch in January - I only need about $2500 more to be able to pay for the performers, Auslan interpreters, Welcome to Country, and catering/refreshments. So please keep sharing with your networks! People can continue to donate through my Ko-fi, or if they would like to donate a tax deductible donation then my Australian Cultural Fund is a viable option. Another way to donate to the cause if you want to remain anonymous and not send your details through the internet is via my PayPal: TLeighs World Vision.
I also made a 2024 calendar jam packed full of the images I took over the course of 2023. If you would like to buy a copy for friends/family/yourself as a delightful Christmas present, please get in touch privately and I can arrange the order through Vistaprint (they look very good, I am very happy with the quality!). I am currently selling the 300gsm high gloss version for $32 (including postage – Australia only), but this price could rise, so get in quick! This is currently an exclusive offer - I will be launching to the public next week!
So much happening, but I guess that is life in a consumerist society when you're an independent artist hustling to get your message out in to the wide yonder.
Whilst the wonderful world of art and creation has been occurring, I have also been combating hate for Muslims, in particular Palestinians who practically live in concentration camps that are now being relentlessly bombarded by a Zionist government who has granted exploration oil licenses to land not currently their own; supporting my Blak friends and their communities after an atrocious referendum – it is time for Treaty and Sovereignty; writing to the NSW government to end the use of conversion therapy on trans and queer humans; writing to local, state, and federal government over the continuing funding of the forestry sector and selling fresh licenses to new coal projects; championing for disability equity; and currently shouting loudly about ending horse cruelty (#NupToTheCup).
Oh, and I also fought fungicide infection in most of my 65 house plants and both a carpet beetle and clothes moth infestation, which meant cleaning absolutely everything and scrubbing every surface, nook, and cranny. Not so great for someone whose schizophrenia manifests bugs!
Needless to say, I have not been sleeping and have had to request emergency counselling services to deal with everything. My message to y’all this blog post though is that you must continue to fight for what is right in the world, but occasionally take a break for self-care. You are useless if you collapse. Pace yourself. Monitor yourself for signs of cracks and love yourself. Stop for as long as you need, talk to loved ones, or if they too are frazzled, speak to Lifeline or some other professional service so that you can get back to the long fight for the wellbeing of our communities and planet. Yesterday I drove to the nude beach for a couple of hours of nature and sun time, and now I am refreshed and back in the battle.
Many thanks to y'all for your support. Please continue to talk about what I am trying to achieve - community unity to reverse climate devastation, especially if financial support is out of your means now. At times of crisis our souls still need art and artists are often at the forefront of change, especially those of us from minority communities.
With love.
T.Leigh
Together we get sht done.
My belief is that the bigger I can make this gala, the more people will talk about it, therefore the more people will come and see and read what it is I am trying to achieve. Please help me reach my target because we all need this. We all need a sustainable planet. We all need community.
My question(s) for this blog is this: what price are you willing to pay to save the world? At what cost are you being silent? Will you be a leader and join me on this journey?
After the hectic night that was my debut solo exhibition launch on the 7th of September at SOL Gallery, with support from Pride Foundation Australia, I have taken a couple of days off, hence why this post is a few days past the original schedule (and if you read my blog posts, you know how much I love my schedule!).
SOL has advised that over 500 people attended the gallery over the nine days, and together with seeing so many new faces there, plus the amount of people who have been discussing my series “The Reclamation of Terra” on socials, I consider this to be a huge success and am super grateful. My series needs people. It needs your passion as much as it needs mine, so I am thankful you see the work that I have put in, the heart that is in every palette stroke, and the desire to unify community and heal the planet.
A lot of people have raved about the Acknowledgement of Country that my dear friend and MC Bayley Turner made on the 7th, so I have added it here. You have also remarked that my speech was full of passion and action, and I know it has prodded a few of your inspiration buttons (consensually, of course). You will find that here. You can also see/hear the speech on my YouTube channel. For audio descriptions of all the pieces, including the Look Book, please head to my Soundcloud.
So, what is next for me and for this series? Those of you who have bought a painting or inquired about pieces know that certain pieces will be touring and that there will be a gala exhibition opening in January 2024. Whilst the details are under wraps whilst the Midsumma embargo remains, I can tell you that the night will champion rainbow performers, highlighting the great strength of the LGBTQIA+SB community.
However, to bring my vision to actuation, I need community and ally support. If you or your business (or you know a business who) is passionate about a sustainable planet and about community unity, then please support this project via my Australian Cultural Fund fundraising page. This absolutely includes allies. Whilst the might of the rainbow movement is fierce, we cannot do this without the support of our allies. No amount is too small, and certainly, no amount is too large!
I have incredible performers from many nationalities representing a cross-section of our diverse community lined up and I want to pay them what they are worth. I would like Auslan interpreters, all written material interpreted into Braille, and official Welcome to Country, all so that this gala can be as accessible and open to everyone as possible.
Due to the heritage listed status of the Victorian Artists Society, frames and hanging materials need to be purchased. Because I believe all art should be attainable and reasonably priced, my pieces are valued accordingly, however, I will also be professionally printing each landscape photograph as a limited run of eleven at A2 size on 310gsm rag to offer an even more affordable option to own a piece of this important series. The fabulous Thirds Fine Art Printing in Brunswick have generously agreed to offer sponsorship, however as they are a small independent local business, there is still a sum to pay for their amazing service and time.
I have an amazing event photographer and videographer lined up to capture the spectacle and they both must be paid their worth too. The event photographer recently worked for the Melbourne International Film Festival, and the videographer, who will be interviewing attendees on the night (with your permission of course), has recently worked for the Indian Film Festival.
Because I am nearing my fifties, I am of a mindset that you cannot have a gala without food and beverages. I will be approaching dal Catering in Geelong to supply the catering as they train students with disabilities in the hospitality industry so that they are employable after completing school, an amazing ethos. Because of how sensational they are, I will not be asking for a discount on supplies. Whilst I am all about the hustle and have been talking behind the scenes to Victorian beverage companies, I am still to lock in a sponsorship, so must raise funds for a proper “knees-up”.
Let me make this perfectly clear: I am not paying myself for this project, unless I obtain a large grant, and only once I have paid everyone what they are worth. I am extremely passionate about this project and its aims that I am even putting my own savings into this gala. My belief is that the bigger I can make this gala, the more people will talk about it, therefore the more people will come and see and read what it is I am trying to achieve. Please help me reach my target because we all need this. We all need a sustainable planet. We all need community.
My question(s) for this blog is this: what price are you willing to pay to save the world? At what cost are you being silent? Will you be a leader and join me on this journey?
Image credit: Bhavin Mettanant, @rindexfinger
T.Leigh
And So It Goes: When you ignore the warning signs.
My body had been sending me alarms for months, which I had spoken with my counsellor about, but had done naught else to remedy the situation. At the end of the blog, I asked “Am I following the right path for long-term sustainability?” The short answer, dear readers, is “No!”
Image Description: B&W image of a large single rock out in the sea. As this is a long exposure both the light sky and slightly darker sea are smooth and free from most distractions. On the rock are white birds.
I wrote in my last post that with the lead up to my debut solo exhibition @ Sol Gallery (see my events page for more details), my sleep, had become an existential exercise in futility.
My body had been sending me alarms for months, which I had spoken with my counsellor about, but had done naught else to remedy the situation. At the end of the blog, I asked “Am I following the right path for long-term sustainability?” The short answer, dear readers, is “No!”
I was brought up by a military man, the first (and only) of his family who went to University. He thought this was the pinnacle - that you worked hard and achieved greatness - of life. He drove this home to me most weeks, whether it be in my academic endeavours, or my many sporting achievements. When I quit competitive sport in my teens, I was lying when I said, “it was too competitive, I was no longer in love with it”. The reality was, I didn’t want to run (soccer, softball, and cricket - and basketball, would you believe?!) because my chest was growing quite large and moving “inappropriately”. This was the deep-seated body dysmorphia I am still recovering from, even 13 years after chest surgery. When I quit, my father saw it as a failure. That I wasn’t trying enough, that the whole point to life was to be competitive. “Head down, bum up.” How often did he say this phrase to me? How ingrained it is within me still. Then the on-set of Capitalist 90’s hit, and, well, we all know how that is turning out.
On the other side there is my ma. A strong woman with many flaws. After she divorced my abusive father her social anxieties and self-loathing (that I argue were caused by my father) increased little by little and literally fed her to the point where she can barely move, and now falls constantly when she does. She lives in a rough part of the Northern suburbs an hour out of Adelaide and rarely leaves her house due to the sickening insults the neighbourhood teens heap on her. This is probably also why she refuses to use her mobility aids. I see her and do not want to be her. I drive myself to work out often with my support team, eat clean as often as possible, and constantly monitor for signs I’m “doing it wrong”.
So, working myself into the ground is an endemic coding deep within my DNA. I have asked my counsellor how one, with such an upbringing, stops working/giving at 110%? Ten years ago, when my body and mind literally broke directly caused due to the stresses of overworking and a very large insurance company who did little to help, I vowed I would slow down. For a long time, I did.
Little by little, however, I forget I have these acquired disabilities that need to be nurtured and my body must be listened to when it speaks up. My body is (and probably always has been) quite vocal when it needs extra assistance. I have tried, in the past ten years, to find the work/life balance I plead to all my friends to find. I think currently, I am failing. I am not alone.
The more I immerse myself within the art community, the more stories I hear of artists burning out - before they are 30 - or in their first five years of being in the industry. This is because the hustle is real. You hustle to have a voice. Then if you have a voice, you hustle to keep it; to grow it; constantly hustling. We hustle today, because tomorrow we are not guaranteed an income (and creating art is actually more expensive than you would think!).
If there was a minimum wage for artists, as the Greens Party here in Australia have weakly floated a few times, then yes, we would still be poor - but we could allow ourselves more easily to occasionally take breaks. Those of us living with disability would more often than not, stop of our own accord, before our bodies forced us to stop!
Needless to say, I have been laid up in bed with exhaustion and flu for ten days. My schedule has been rearranged, then rearranged some more as I try and keep hustling. Yesterday I masked up and took my artworks to the gallery for installation. Today I am off to my GP for a necessary health check as my body falls apart some more. I tell myself that I must be better for Thursday, so I force myself to rest, but still struggle to sleep.
Human beings are complicated. Human beings with disability, more so, particularly when those disabilities are largely invisible and can be oft times ignored. Whilst I am sure I have long shed my internalised ableism; I still must contend with and unlearn my conditioned work hard coding. I need to remind myself that stopping for an hour to play a computer game (I only play Civilisation VI, for those who want to know, maybe occasionally Wii monopoly or Wii sports – yes, I still have and use a Wii), is not a failure. Stopping is a success. Stopping IS a success. Stopping is a SUCCESS. Stopping is a success because it will increase both my longevity and my happiness. Just STOP!
At the end of every blog, I ask a question. This time I am not going to. This time I am simply going to submit the blog and go back to bed until I must go to my GP appointment. Rest well folx, and for the love of all things holy – S.T.O.P.
T.Leigh
Once More Unto The Breach: How to keep going in the face of adversity.
Adversity is my mortal foe. Yes, I live with depression, anxiety, schizophrenia, an acquired cognitive disability, chronic pain from arthritis, and autism, but they are all exacerbated by the stress of life's many adversities.
Image Description: B&W image of a dead uprooted bush, on its side, with dried branches spreading out from left to right.
Adversity is my mortal foe. Yes, I live with depression, anxiety, schizophrenia, an acquired cognitive disability, chronic pain from arthritis, and autism, but they are all exacerbated by the stress of life's many adversities.
In the lead up to my debut solo exhibition @ Sol Gallery (see my events page for more details), my sleep, which is bad at the best of times, has become so appalling that in the rare occasions I do sleep, I am bombarded with dreams that never stop moving and are filled themselves with anxiety and time-sensitive decision-making; they are exhausting; I wake up exhausted. Often, however, I do not sleep. Sure, my eyes might be closed, but there is no rest to be had.
It is more than just the September exhibition. I am planning an exhibition gala in January and in order to pay for just the accessibility alone, not to mention paying for the gallery, entertainment, drinks and food, I am having to spend upwards of ten hours on multiple grants per month, none of which I am guaranteed to receive. The stress of being poor, of eating right, of buying all my medications, of fitting in appointments, my fitness regime, and my regular schedule, on top of creating a voice I think is worthy of being heard in the art world for a cause I believe worthy of fighting for, is immense.
On Friday night, two songs into watching amazing New Zealand singer Bic Runga live in concert, I found out my ma had yet another serious fall (she has been suffering from falls for many years due to her [juvenile] arthritis and medical obesity). I spent the rest of the concert on the phone to my beloved aunt who lives not too far from my ma in the Northern Suburbs of Adelaide; and then on the phone to my sister (who is also going through her own trials now). My mother remains in hospital and will be for the foreseeable future as they remove her reconstructed (now smashed) knee and put in a new one. She is being looked after, but the stress of knowing that at any stage she could fall again once she is discharged is a huge weight to bare.
I have been telling people for the past ten years, since acquiring my disabilities from working in a stressful job I loathed, that balance in life is crucial to maintaining a happy and healthy life. Yet here I am, working harder than I have even before my mind and body broke. Yes, I am a lot happier now and doing art is a passion, I would not do anything else. However, I am failing to see the balance right now, and that must change, or I know that no matter how many pills I take, my mental illness, the disabilities, the pain, will become so much worse than what they currently are, and currently they are bad.
Science and medicine have proven the correlation between the increase of pain in the body with the increase of stresses in a person’s life. Due to unchecked stress, I can be sitting amongst friends, or attending a workshop, and by the end of an hour (or not even) I can be in immeasurable amounts of pain. Yet when I lift heavy weights and do Pilates with my Exercise Physiologist, the pain remains at a manageable level because my stress is being actively managed.
Since my multiple diagnoses I have learnt to look at the silver lining, to not catastrophise and think of worse case scenarios, so I am not dire, but I do have to be conscious of asking for more help from family and my networks. I do have to lay in bed to “nap” in a dark room with my earplugs in for 45 minutes, even if my brain doesn’t switch off. Sensory depravation is a core element to maintaining good health for me because I have tried numerous times to meditate in various styles, but it just doesn't work. Removing sensory noise is the only way I find relaxation at these times of high stress and adversity. Oh yes, walks in nature reset my wonky equilibrium, and I feel exuberantly blessed in those moments, but often, I have my camera with me with the direct purpose of working. Sensory deprivation is my only downtime of late.
Before I was diagnosed as living with autism, I masked in the face of the gaslighting world around me. I ran charities and was involved with running queer social events. They would inevitably leave me bedridden for weeks at a time as I recovered from the stress of “putting my head down and my bum up”, as my father always preached to me. You always keep moving forward and never ever give up. I now know that motto to be extremely unhealthy and unhelpful.
But my title is how to keep going in the face of adversity. We tend to think of motion, of never stopping, when we think of “keep going” or “Just keep swimming” as Dory said in Finding Nemo. Like Dory, my memory is not so good, and like Dory, I do like to think positively, but sometimes you must stop, find your bearings, and ask for directions and help from others. Whilst it may seem like you are standing still, or even having to go backwards, this is what moving forwards is truly about. Learning when to lie down for a nap, even when your brain will not shut off. Learning to handball tasks to loved ones, or strangers, in order to get a moment. Learning to listen to yourself and what your body and mind need. Due to my brand of autism, this last one is perhaps the hardest of all. Recognising my emotions, my emotional state, and then knowing how best to care for myself, has taken years to learn the basics of.
What I am trying hard not to do in the face of all this adversity, it to quit. Though I have lived through some dark times where I have literally hit a brick wall, quitting, ultimately, has never been in my nature. Now, that is not to say that stopping a project is the same as quitting, it most definitely is not. Sometimes the healthiest thing you can do for yourself, especially when you live with disabilities, is place the project down and walk away. Whether that be for an hour, a day, a year. Walking away is not quitting. Walking away is giving you the opportunity to stop at the cross-roads, assess your health and your needs and either continue with the project as is but with more supports in place, or change the nature of the project itself.
So, I continue to work with my amazing counsellor and other fabulous humans in my support network to ascertain how best to keep going despite life’s many adversities. I embrace the dark room, but not the potential darkness of the situation. I keep going, even if that means I am in bed with my eyes shut.
In my second blog I asked if this level of work was sustainable. Now I ask: Am I following the right path for long-term sustainability? Follow my blog to find out.
T.Leigh
Is Routine Achievable?
Is Routine Achievable? The daily schedule I chose to use to simplify my day and save my sanity is aCalendar+.
When I first talked to my mentor, award winning photographer Luke David, about writing a blog post on my website, the intention was to post fortnightly after I had edited that fortnight’s photography adventure with my support worker. We discussed that the act of writing a routine blog post would increase traffic to my website, so I am not paying hundreds of dollars for nothing!
However, as autistically structured as I need my world to be, life often has other plans. My three-year-old laptop is reaching its end of days. There are grant applications to be written for deadline. My artwork for my solo show in September needed to be completed. And so it goes. The good news is, all of this (apart from the laptop constantly breaking down), can all be scheduled into my daily calendar. I use the very helpful android app aCalendar+ to write down everything I need to do for the week, month, and year; and I do mean everything. From getting dressed or showering, to eating meals, to taking meds, to events, and work that needs doing, it all goes into the “puttanesca” of life. Not only is every task in there, but it is all colour coded. Some have seen my schedule and exclaimed that it is an eye-sore, that it is too much, but it is what works for me.
That is the key to today’s message and will quite often repeat throughout my blog posts – you must find what works for you! Yes, take onboard what others have suggested, but discard that which doesn’t personally work, or tweak things for a better fit. One size definitely does NOT fit all; we are not automatons; we are individuals who all have unique needs and challenges.
After I was diagnosed with autism 10 years ago and took off my mask that I had worn all my life due to gaslighting (a mask I sometimes put back on due to habit), and was dealing with a cognitive disability that had me wondering around supermarkets for two hours at a time in an anxious fog when only requiring half-a-dozen items, the increased need for scheduling my day and needs became vital. The schizophrenia that I was diagnosed with at the same time as my autism diagnosis caused me to see every speck of dust as a crawling bug or flying insect and before my treatment plan kicked in, I would lose hours staring at the particles trying to determine if they were moving closer towards me.
Whilst I was no longer working and not nearly as busy as I am today, I still didn’t want to get to the end of my day having sat on the couch all day, staring at what wasn’t there. So, I started writing post it notes and leaving them around the house. This evolved into writing lists that I could physically tick off each day. This practice then turned digital, using my phone calendar, which then led me to use the awesome aCalendar+.
Today, when I need to pick up a couple of grocery items, I have forgotten in my regular Click n Collect shop, I write the event into my schedule, creating a detailed list of everything I need. I will often, if I have the time, go onto the supermarket’s app/website, and write down which aisle the item is in. For me this saves a lot of time and anxiety and gets me out of the hellhole quicker! Basically, the more information I can put into each item of my schedule the better it will be for my mental wellbeing.
Doing what works for you will not always be as linear, or as successful, and that’s ok. Be patient with yourself through the trial-and-error stage. Love yourself and give yourself time.
Will I continue to be the Master of my schedule? Follow my blog to find out.
T.Leigh
Harder Than Expected: Balancing expectations with limitations
Harder than expected: balancing expectations with limitations.
Image: by Pam Kleemann-Passi, 7th July 2023, of artist Teague Leigh, with one of his paintings from the series “The Reclamation of Terra”. This canvas is shades of white acrylic and square, 20x20cms.
Since my initial blog post, my intention was to write once a month, at the very least. However, it seems that working for yourself as an artist is a full-time hustle and I have not worked this hard since I was fired from my corporate job ten years ago due to my acquired disabilities making it impossible for me to work in an office environment.
Don’t get me wrong, with that job I was working 8am - 6pm, then immediately working on the charity I was running until midnight most days. This new form of working is not as intense, nor do I hate the work that I am doing. Art is a salvation in my life, and I am blessed to be practising it and that my disabilities do not limit my ambition.
However, whoever came up with the concept that all artists do all day is sit in cafes and people watch/dream, was a right naff tool. That idea couldn’t be further from the truth. I nap less now than I would like; napping being an important part of my weekly well-being routine.
So what have I been doing with my time if not napping, blogging, or sitting around in cafe’s? Since 7th June, I have: attended workshops for artists, run by the Merri-bek council; met Caity Lotz at Oz Comic-Con (ok, so I can’t be working all the time!); entered photography awards; applied for gallery space for my January exhibition; been interviewed for another photographers trans photography project; sat with a CBD treatment specialist and subsequently started a trial for pain management; attended art galleries; continued with fortnightly photography adventures with my support worker; edited those images; fought with my laptop/whispered sweet nothings to her to coax her to work whilst she constantly and consistently crashes; worked for The Emerging Writer’s Festival, photographing their closing night event, celebrating 20 years; fighting with the landlord over the condition of the apartment building (she owns the whole thing) and a water bill three times higher than normal that we were sure was due to a building leak she refused to attend to; locked in a gallery space for January; attended an ecological-meets-science-meets-art panel discussion featuring Yin Paradies and Ecological Gyre Theory organised by Green Bee; wrote a couple of grant applications; had my second essay in Archer published online; submitted my application for a Midsumma 2024 event; applied to a couple of group exhibitions; exhibited a piece from my current series at a group show; hopped back onto instagram for the first time in two years to promote my passions; submitted documents to Sol Gallery for the upcoming September exhibition; watched Electric Fields soar alongside the Melbourne Symphony Orchestra at Hamer Hall; watched Midsumma Pathways alumni, most of whom were my 2022-23 cohort, smash it out of the park at Midsummica - so talented!; write the audio descriptions for all my artwork because accessibility is key; and finally, I completed my series: The Reclamation of Terra! Phew!
Six weeks with nary a nap in sight. I’m wondering how sustainable this level of work is for me now. With my cognitive disability it takes me thrice as long to read and comprehend anything, which means responding to emails, reading/writing grants, and researching tech-speak to try and fix my failing laptop is an onerous chore that eats into my creativity time. Not to mention my poor sleep has eroded even more with the everything of logistics swirling about my head ‘til the wee hours of the morning.
So no, my blogging may not, going forward, be consistent, but I can assure you, it will be quality. My expectations of what I can achieve have been tempered by what my ability can allow. After a lifetime of being gas-lit, of having everyone’s expectations dictating to me what I should and shouldn’t be doing with my time, I am still negotiating with myself what exactly my limitations are. I am still coming to terms with loving this refurbished version of myself. I am having to stop and look at the above list and say, “Well done Teague, you accomplished so much!” Because my expectations had been a massive pile-on that in the end wasn’t feasible, but what was accomplished was a heroic effort.
Is this sustainable? I’m still unsure. I have always had a strong work ethic and a blinkered focus. To not give 110% every day is exasperating. However, I will keep working with my counsellor and the rest of my support team, family, and friends. I will continue to live unmasked and ask myself whether the hurdle in front of me is manageable today, or can it be postponed for a week or two?
I have deadlines now, many deadlines, my health is regretfully failing as I draw nearer to my 50’s, these two things are not necessarily harmonious, but I am determined to find cohesion and balance and consciously live with joy each and every day. I have limited social media to an hour per day, my phone blocks it after that, so that is one less stress to worry about. I am asking more of the people around me, letting them know that I cannot actually do it all myself. I am saying “no” and loving myself for that. When you have acquired invisible disabilities, it is often difficult to see yourself through a lens not of societies creation. People will often look at me when I tell them I am disabled and you can see their brains ticking away, trying to trace your disability, seeing whether they approve of its origin or not. I initially struggled to not judge myself the same way. Now, however, I can say I am strong, I can say I am an amazing human. I can give myself the lenience and the love required to live my life on my terms.
Is this period of frenzied work sustainable? Follow my blog to find out.
T.Leigh